Documents to support the CF Screening Programme

The documents below support the CF Screening Programme

Laboratory Handbook

National Standard Protocol for CF in pdf or ppt formats

Policies and Standards for Newborn Blood Spot Screening in the UK (April 2005)

National Sweat Test Standards

'Cystic fibrosis is suspected' leaflet

'Carrier of a cystic fibrosis gene' leaflet

Repeat CF heel prick test (second sample for raised IRT) - Information for parents - Information for health professionals 

 Communication Guidelines

 CF Screen Positive Fax Template Letter

 CF Probable Carrier Fax Tempate Letter

 CF Suspected - Follow-up Form

 CF Probable Carrier - Follow-up Form

Notifying a baby with CF not identified through the screening programme

• 1. Sibling testing
• 2. Files

1. Sibling testing

Older siblings (of a confirmed case diagnosed from newborn screening) may be at risk of CF. Any testing will be according to clinical procedures.

For any subsequent siblings newborn screening should be undertaken as normal.