Archived documents from PKU review 2008-10

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PKU Meeting Minutes 22.06.10
228KB - Posted by: Brielle Woods - 12/11/2010

Minutes from PKU meeting held on 22nd June, 2010.

1. Summary of Stakeholder Comments and Responses from Expert Group relating to Document 1 - PKU Screening Protocol.

2. Summary of Stakeholder Comments and Responses from Expert Group relating to Document 2 - PKU Diagnostic Protocol.

3. Summary of Stakeholder Comments and Responses from Expert Group relating to Document 3 - PKU Initial Clinical... more »

4. Summary of Stakeholder Comments and Responses from Expert Group relating to Document 5 - PKU Template for... more »

5. Summary of general Comments and Responses from Expert Group relating to the process and documents in general.

Minutes of PKU meeting 24th February 2010
82KB - Posted by: Christine Cavanagh - 12/11/2010

Minutes of the meeting of the PKU expert group to review the comments received during the consultation and finalise the... more »

Notes of PKU Workshop Nov 2nd 2009
103KB - Posted by: Christine Cavanagh - 12/11/2010

Notes of PKU Workshop Nov 2nd 2009

Minutes of PKU meeting 8th September 2009
75KB - Posted by: Christine Cavanagh - 12/11/2010

Minutes of meeting to finalise draft review documents for consultation.

Minutes of PKU meeting 15th June 2009
92KB - Posted by: Christine Cavanagh - 12/11/2010

Minutes of PKU meeting 15th June 2009

Minutes of PKU dietetic and nursing group 24th April 2009
60KB - Posted by: Christine Cavanagh - 12/11/2010

Minutes of PKU dietetic and nursing group 24th April 2009

PKU borderline screening phenylalanine results survey by Dr Helena Kemp
65KB - Posted by: Christine Cavanagh - 12/11/2010

UKNSLN screening survey - PKU referrals from Screening Programme – Survey November 2008

PKU summary galactosaemia survey by Dr Helena Kemp
105KB - Posted by: Christine Cavanagh - 12/11/2010

UKNSLN Screening Survey - Phenylalanine and tyrosine concentrations in newborns diagnosed with galactosaemia.

Notes of the meeting December 2nd 2008
96KB - Posted by: Christine Cavanagh - 12/11/2010

The purpose of this meeting was to look specifically at UKNSPC PKU standards and referral guidelines, review current... more »

Appendix 1 from: Notes of the meeting December 2nd 2008

Report of the meeting December 2nd 2008
142KB - Posted by: Christine Cavanagh - 12/11/2010

This report is the outcome of a meeting of an expert working group, held in early December 2008, to initiate a process... more »

Comments received on the Report and response of the Expert Group
143KB - Posted by: Emma Scott - 12/11/2010

Summary of Responses to Report with Actions/Comments from Expert Group.The report was made available for comment during... more »