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Newborn Blood Spot Home
Other NHS Screening Programmes

National Programme

About Us
Introduction to the Programme Centre and its work
The Team
Structure and Reporting Arrangements
Contact Us
Email Us
Job Vacancies
Press Office
News
RSS Feeds
Conferences & Events
Newborn blood spot screening conference June 2008
Publications & Resources
Parent resources
FootPrint newsletter
Annual Reports
Celebrating 10 years of the UKNSPC: 2002-2012
Links

Quality

Care Pathways
Commissioning
Communication with parents
What is known about communication with parents
Telling parents about the heel-prick test consultation
Pilot study of pre-screening parent leaflet
Evaluation of UKNSPC information resources
Serious Incidents
Data Collection
CHRD Data Collection 2011-2012
Laboratory Data Collection 2011-2012
Cystic Fibrosis
Equality
Guidelines
Guidelines for Newborn Blood Spot Sampling
Health professional handbook (April 2005)
Implementation and reporting guidance (April 2005)
Laboratory Quality Assurance
Residual Spots - Ethics and Governance Framework
Standards
Consultation on standards for offer, coverage and timely identification of untested babies
UK Data Collection and Performance Analysis Reports
Data report 2009-2010
Data report 2008-2009
Data Report 2007-2008
Data Report 2006-2007
Data Report 2005-2006
Data Report 2004-2005
Policies and Standards
Cystic Fibrosis Diagnostic Outcomes
Quality Assurance

Screening Information

Public
Blood spot screening for your newborn baby leaflet
PKU is Suspected Leaflet
CHT is Suspected Leaflet
CHT and Your Child Further Information
Newborn Screening for Cystic Fibrosis: Your baby needs a repeat screening test - heel prick test
Cystic Fibrosis is Suspected Leaflet
Carrier of CF Leaflet
MCADD is Suspected Leaflet
MCADD information sheets for parents/carers
Are you pregnant with a family history of MCADD?
Newborn blood spot screening for babies in hospital specialist units and babies born early leaflet
Screening stories
Frequently Asked Questions
Sickle Cell Carrier
Sickle Cell Disease
Professionals
Changes to the current policy for CHT screening in preterm infants
The CHT Programme
The PKU Programme
The CF Programme
The MCADD Programme
The SCD Programme
Tay Sachs Research Project
Consent
Education and training
Repeat blood spot samples
  

Projects

'Once is Enough'
NHS numbers for screening 2008/9
Avoidable repeat tests in 2008/9
Best practice examples
Each one is unique: How to access the NHS number
Bar-code project
Regional Coordinator Toolkit
Support Documents
NHS Number Bar-Code Label for Newborn Blood Spot Screening
Bar-coded Label Project Implementation Training
Blood Spot Card
Newborn Blood Spot Card Review 2011 - Consultation
Independent Midwives NHSmail Project
Newborn Blood Spot Screening 'Receipt of Sample' Failsafe Pilot
Newborn Blood Spot Screening Status Codes and Results to Parents
Registers

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