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UK Newborn Screening Programme Centre
NHS Newborn Blood
Spot Screening
Programme
 
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Home
Newborn Blood Spot Home
Other NHS Screening Programmes

National Programme
About Us
Introduction to the programme
Governance
Celebrating 10 Years of the programme
10th anniversary messages
Conferences & Events
Newborn blood spot screening conference June 2008
Contact Us
Email us
Job Vacancies
Links
Press Office
News
RSS Feeds
Publications
Parent resources
FootPrint newsletter
Annual reports

Quality
Care Pathways
Commissioning
Communication with Parents
Cystic Fibrosis Diagnostic Outcome Reports
Data Collection
CHRD data collection 2012-13
Laboratory data collection 2011-2012
Cystic fibrosis data collection
Equality
Guidelines
Guidelines for Newborn Blood Spot Sampling (February 2012)
Health Professional Handbook (December 2012)
Implementation and Reporting Guidance (April 2005)
Laboratory Quality Assurance
Policies and Standards
Quality Assurance
Residual Spots - Ethics and Governance Framework
Serious Incidents
Standards
Consultation on the newborn blood spot screening standards mapped to the generic standards framework
UK Data Collection and Performance Analysis Reports
Local data reports 2005-2006

Screening Information
Public
Blood spot screening for your newborn baby leaflet
PKU is suspected leaflet
CHT is suspected leaflet
CHT and your child leaflet
Newborn screening for cystic fibrosis: your baby needs a repeat screening test
Cystic fibrosis is suspected leaflet
Carrier of cystic fibrosis gene leaflet
MCADD is suspected leaflet
MCADD information for parents/carers
Are you pregnant with a family history of MCADD?
Newborn blood spot screening for babies in hospital specialist units and babies born early leaflet
Screening stories
Frequently asked questions
Sickle cell carrier leaflets
Sickle cell disease leaflet
Professionals
Changes to the policy for CHT screening in preterm infants
The CHT programme
The PKU programme
The CF programme
The MCADD programme
The SCD programme
Tay Sachs research project
Consent
Education and training
Repeat blood spot samples
Frequently asked questions - professionals
  

Projects
'Once is Enough'
NHS numbers for screening 2008/9
Avoidable repeat tests in 2008/9
NHS number: best practice examples
Each one is unique: how to access the NHS number
Bar-Code Project
Bar-coded label project implementation training
Blood Spot Card
Newborn blood spot card review 2011 - consultation
Expanded Newborn Screening Study
Independent Midwives NHSmail Project
Newborn Blood Spot Failsafe Solution
Newborn Blood Spot Screening Status Codes and Results to Parents
Surveillance of Congenital Hypothyroidism
The Phenylketonuria (PKU) and Congenital Hypothyroidism (CHT) Registers
Frequently asked questions about the Registers
Selected papers from the Phenylketonuria (PKU) and Congenital Hypothyroidism (CHT) Registers

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